Interesting thread someone wanting to regress/ more autistic

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ASdogGeek
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30 Jan 2013, 11:05 am

So I found san interesting thread on a forum called topix a poster was looking to be more autistic

The OP Frog writes

Quote:
I want to undo ANYTHING that NEUROTYPICALS have tried to FORCE me into. I DON'T want to act even the slightest bit Neurotypical. I WANT to do what they call "regression" and I WANT to go as far back as possible, because that is who I REALLY am. I want my creative energy back. I want it all back, even the supposed "negatives." Even if it means fighting everything in "society," I want to do EVERY THING in my power to be ME again, as unaltered and natural as possible. Is there a way that anyone can help me or offer suggestions on how to be my true Autistic self again? I would be indebted to you.


I read though some of the comments but one commenter caught my eye and I think I know who it is, not sure but here is the reply(s) that caught my attention

AutismmomSam1 writes
[quote Dear Frog,
I don't understand your hatred for NTs or their attempts to improve you quality of life. As a mother of a severely autistic child it breaks my heart that someone on the spectrum would hold such strong judgement and anger towards NTs who only tried to help. I do everything I can to improve the quality of my son's life,

That said your the third person I know on the spectrum who hates them selves for not being severe enough. Part of me wonders if some of this is routed in parents and those in the NT community who assume you aren't autistic if your not severe enough. This is your life ad not mine and I will not judge you for what you want in life and I will give you the best advice I can.

First you must understand you will essentially be re=wiring your brain (again) and you will receive a lot of judgement anger ad may not be able to access the resources you need after you do so.
I don't know what form of autism you have but I will treat it like classic autism.

You will need to get and read your medical records of the first 5 years of your life to see the purest you there was.

step 1 stop talking if you didn't develop verbal communication naturally then it is something NTs taught you. You can do this slowly gradually or all at once. you can purchase a PECs system or make your own (not sure if you want to still write) if o writing for communication is also an option

step 2 self isolate seek human interaction less (Unless you were a friendly sociable child) instead engage in self entertaining activities such as drawing puzzles ect

stim more, go back to hand flapping humming spinning ect. Don't care where you are or who is around when you do it

stop social referencing don't look at people to see how they react or respond to thing

to reset sensory issues (some will never be able to be restored) wear sunglasses and ear plugs or shooting range head phones for a week or two. once you take them off things WILL be louder and brighter for you and you may be less able to filter sounds again.

don't inhibit your emotions, if you need to cry do so scream do so ect

start intercepting things literally on purpose stop thinking figuratively

set strict routines and stick to them don't let anything interrupt them

Finally depending on how well you toilet trained you may want to go back to using diapers, because my son Jacob is 9 and still can't use the toilet reliably and is still in diapers because of it

anyways hope that helps and please let me know how it all works out for you![/quote]

She also adds
Quote:
last few tips
focus on details ignore the whole picture
stay in the moment
don't make eye contact
don't read body language
lastely
ask this question on wrongplanet it is an autism/aspie forum

now to speak on my credential, I am a mother of 9 year old boy with severe autism. I also have a for ll intent and purposes sister with "mild," autism I also care fore a friend o the spectrum as well. al of them have to struggle hard every day. but since you wish to be in the purest form of autism possible let me tell you a bit about my son Jacob.
Jacob is 9 years old and though he has 10 to 13 words total in his vocabulary they are non functional and he can not use them in any way to communicate. I only ever hear them maybe once a year used in repetition like he would any sound he makes. somedays he will scream and cry for hours on end because he cant get the words out. he can't tell me if he is sick or injured or if something is bothering him. I have to monitor him all the time to watch for subtle signs that something is wrong. often times when he is sick he will scream while e he punches himself over and over again. Jacob wanders and has no sense of danger. he has gotten lost and gone into very dangerous situations such as but not limited to bolting into traffic, going neck deep into a quarry, running into a stream, climbing onto a strangers car and climbing under a strangers car.
his sensory issues are really bad and he needs to wear sunglasses and shooting range headphones when we go grocery shopping. any trip to a store is like going to war for him and if it is longer then 20 minutes we WILL have a meltdown.

We are still working on teaching him to use the potty but have had little success and he needs to be in diapers. I believe he is unable to sense when he needs to go.

his meltdowns range from mild to severe and they can come with self injury and last for hours or even days. we don't know what causes many of them except, sickness, frustration, anxiety and pain from his sensory issues or a change in his routine.

Jacob needs a predictable routine or he falls apart and will either shut down or meltdown He can't go to regular school because they can't handle his issues. I homeschool Jacob myself. We have an OT, PT speech and ABA therapists coming in and out of our house on a daily basis!

Jacob has no friends except for his sibling Zack who is 5 and family members. He relies on me for everything I am his advocate I am often his voice.
Jacob is a brilliant and loving boy he loves nothing more then to be held or cuddles. he so badly longs to connect. He also loves to give kisses. Jacob will hug complete strangers :) He struggles and tries hard everyday and everyday I am so proud of him.

Should you choose to go through with this you will have many many struggles as well. There is a VERY high likelihood your family will shun you for it, many people will accuse you of doing it for attention. you (if you work) will likely become unemployed. you are also likely to loose friends. you will likely also be unable to obtain many of the resources and services you will need. Many in the autism community will likely turn against you as well. this could also end up hurting those who love you but lastly if you go through with it in the longer term it could possibly be irreversible and you could end up with impairments in your speech and verbal communication.

Note my sister who has mild autism and my friend with Moderate autism can't get the services they need so unless your able to show your regression is the result of a medical issue odds are you wont get the services you will need after regressing

lastly I have a question

if you don't believe in severity levels how do you expect to be able to become "more autistic,"?
.

I was wondering what others though on this topic? What about Autism mom Sam's advice? I showed this to a friend who said Sam sounded like she was being helpful but sarcastic at the same time?? That she was trying to make a point to him or her ? But I don't know.

To read other commenters the link below

Topix wanting to be more autistic


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Sweetleaf
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30 Jan 2013, 11:17 am

Hmm I don't see where the OP in that says they hate neurotypicals or anything to that effect, seems more like they are unhappy about attempts to change them that have not been helpful and just feel like they are getting forced behavioral modification they don't want and ranting a bit about it.

I think the responder should take a break from the 'OMG I've been cursed with an autistic child.' bandwagon.


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Comp_Geek_573
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30 Jan 2013, 12:14 pm

I can see where that poster is coming from. While some NT skills will be useful for me to have, I do NOT want to be 100% NT. I don't want to become a "sheep" who does things only because everyone else does, and I know the tyranny of groupthink. Nor do I want to start placing more importance on looking smart than actually figuring things out! I think the world in general cares TOO much about image.


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30 Jan 2013, 12:14 pm

Sweetleaf wrote:
I think the responder should take a break from the 'OMG I've been cursed with an autistic child.' bandwagon.


Preach it sister!



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30 Jan 2013, 12:30 pm

Being newer, I don't think I know who the person is, but that being said...

I view the feedback as a particular kind of manipulation. It was phrased so as to be "helpful" but really, the point is to chastise the original poster for not appreciating all of the "neurotypical" things he has learned.

To be honest, I see parts of both sides and I disagree with parts of both.

Wishing to be less functional than you are now seems silly to me. I understand that the person may feel that he has lost certain aspects of himself (he mentions creativity) and I can understand wanting to regain that, but to wish yourself to your lowest form of functioning seems a bit bizarre IMHO.

While he didn't SAY he hates neurotypicals, it has been my experience that many people with this strong of an opinion on such matters often do. Neurotypical bashing gets very wearing over time, especially as a parent because there comes a point in many a parent's lives when they are accused of not loving or accepting their kids because they want to help them. It's a sensitive topic. I can see where the rant came from, even though I do not agree with it.

I think the OP should examine what specifically he lost that he wants back (for example, would he like being incontinent again?), and I think the responder should spend more time trying to understand what the OP is really saying and less time trying to prove how absolutely miserable her son is as a way of showing the OP how wrong he is.


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Raziel
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30 Jan 2013, 12:56 pm

I can understand that wish.

I was very unhappy for many years as a teenager because I wasn't NT and also "lost" my autistic side. I was "lost" in between and I needed very long to find my place and also to accept that.

I was very classic autistic as a child, so I know all that how it feels like "not talking" and everything.
But now, I'm happy the way it went, because I'm able to live on my own etc.


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30 Jan 2013, 1:10 pm

That just made me sick I couldn't even be bothered to read it all. Okay so a retarded person can go back to being retarded by not using their life skills anymore they have learned and oh forget about learning how to spell their name and learning their phone number. A dyslexic person can go back to reading poor again and spelling poorly and having more difficulty. An ADHD person can go back to being disorganized too and having a shorter attention span again, hey lets all regress back to our old selves shall we and I can go back to being mute again and go back to not understanding people well and have more of a difficult life and go back to being rigid I act like a control freak and want everything my way and I dominate how others play when I am with them. Now that person wants to be more autistic again?


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30 Jan 2013, 1:17 pm

League_Girl wrote:
That just made me sick I couldn't even be bothered to read it all. Okay so a retarded person can go back to being retarded by not using their life skills anymore they have learned and oh forget about learning how to spell their name and learning their phone number. A dyslexic person can go back to reading poor again and spelling poorly and having more difficulty. An ADHD person can go back to being disorganized too and having a shorter attention span again, hey lets all regress back to our old selves shall we and I can go back to being mute again and go back to not understanding people well and have more of a difficult life and go back to being rigid I act like a control freak and want everything my way and I dominate how others play when I am with them. Now that person wants to be more autistic again?


+1



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30 Jan 2013, 1:34 pm

Wow... Topix doesn't have the best reputation as a lot have been trolling or try to get attention on there. Topix reputation is filled with knowledge there are trolls.

Its possible the OP on Topix was just trying to get attention, and it's possible maybe it was someone serious or half serious. I guess i would never know. The wording of the OP seems extreme. He wants to regress all the way to the "purest?" form of Autism. Or most severe form i would assume.
The mention of NT makes me think it's someone familiar with this site (he also named wrong planet) i don't know of many sites that refer to NTs yet i don't get out much.

The autistic mother that replied back to OP i think was trying to make him see how hard it would be to regress all the way back. It would be instead of talking, screaming and crying.
The woman has an autistic son and other relatives, and she probably would love her son to function more so. Then someone on Topix the OP puts up that post it's kind of like well the OP just took everything for granted. Any progress ever made to help him, anything he ever learned.

The OP seems to have hatred towards NTs and blames them for "forcing anything into him".

I hope i worded this post correctly enough. Topix can have it's share of a lot of trolls that other sites i have belonged to will not accept any Topix links or commentary as it's usually fictional or trolling.



Honestly, IMO, i think it's some attention seeking kid messing around on the internet.

In the mid 1980s they had no spectrum, nothing for Autism unless you were classic case and then it was bad. They didn't have the knowledge.
They still got me special education help in school and that teacher was able to recommend a theraputic horse back riding program to my mother, then i went to the horse back riding therapy for 8 years.
I am thankful for the help i got in a time when they just didn't have the advancement to know.
They have not cured me, or completely helped me or anything like that, i am just thankful that they made the steps to put me in special and then suggest the program, and for me to be part in the program for so many years. I also gained a mentor/ mother type figure at the riding therapy.



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30 Jan 2013, 1:39 pm

I thought the post the OP quoted was very provocative. It could have bee a troll like Chloe said.


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30 Jan 2013, 1:49 pm

Quote:
I want to undo ANYTHING that NEUROTYPICALS have tried to FORCE me into. I DON'T want to act even the slightest bit Neurotypical. I WANT to do what they call "regression" and I WANT to go as far back as possible, because that is who I REALLY am. I want my creative energy back. I want it all back, even the supposed "negatives." Even if it means fighting everything in "society," I want to do EVERY THING in my power to be ME again, as unaltered and natural as possible. Is there a way that anyone can help me or offer suggestions on how to be my true Autistic self again? I would be indebted to you.


He didn't actually say he wanted to be less functional. I mean, 'regression' gets used both for less functioning and for acting more autistic, and he did put it in quotation marks, suggesting he doesn't agree with the word.

To me, he sounds like someone who's been abused into living a lie, and now wants to heal the damage. I don't think he deserves the vitriol being directed at him.

Imagine if he were a gay guy, who through intensive therapy had been trained to suppress attraction to men, and now wanted to relearn how to feel those feelings again. That's the sort of thing I think is going on here.

People need to learn there's a big difference between teaching a kid useful skills and teaching them to live a lie. It's possible to improve an autistic kid's functioning without trying to make them NT.



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30 Jan 2013, 1:58 pm

Chloe33 wrote:
The OP seems to have hatred towards NTs and blames them for "forcing anything into him".
.


Well from the sound of it things where forced on them, wether they are being honest or not I have no clue...but if they are then I can't blame them from being pissed off about it. Are you suggesting things are never forced on people with autism?


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InThisTogether
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30 Jan 2013, 2:05 pm

The truth is, things are "forced" on kids all the time, NT and autistic alike. Kids aren't always reliable judges of what is in their own best interest. My daughter would be toothless by now because she hates the taste and sensation of brushing her teeth, but I "force" her to do it anyway, ykwim?


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30 Jan 2013, 2:11 pm

It sounds like the op is saying that he wants to stop faking nt.



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30 Jan 2013, 2:18 pm

InThisTogether wrote:
The truth is, things are "forced" on kids all the time, NT and autistic alike. Kids aren't always reliable judges of what is in their own best interest. My daughter would be toothless by now because she hates the taste and sensation of brushing her teeth, but I "force" her to do it anyway, ykwim?


Ok let me clarify sometimes negative things are forced on kids that they would be better off without, NT and autistic...I am sure it happens to both and those who don't fit into either of those. I think maybe the OP of that experianced some of those negative things, not things like brushing their teeth.


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30 Jan 2013, 2:51 pm

Quote:
Ok let me clarify sometimes negative things are forced on kids that they would be better off without, NT and autistic...I am sure it happens to both and those who don't fit into either of those. I think maybe the OP of that experianced some of those negative things, not things like brushing their teeth.


An example here.