Are you self diagnosed or diagnosed by a mental health profe

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Are you self diagnosed?
yes 37%  37%  [ 51 ]
no 63%  63%  [ 88 ]
Total votes : 139


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Joined: 23 Mar 2015
Gender: Male
Posts: 5,253
Location: Calne,England

16 Oct 2016, 7:04 am

From my own research I am certain I have traits but probably fit a similar disorder,NVLD, better.
Over the years,on several occasions, I have heard the A word used by psychiatric staff, but there has never been any move to arrange for a formal assessment.

The last time the A word was raised I was told "Not that there was anything much we can do". Perhaps this relates to my age(59) or perhaps it's because they are more focussed on what they see as primary psychiatric symptoms. I do wonder whether a more holistic approach to psychiatry would have looked beyond those so called primary symptoms.

My biggest problem is social interaction difficulties. These stretch back as far as I can remember. The rules of social engagement seem like a foreign language to me.
I have only had one serious adult friend. It was a woman nearly 22 years older than me that I met in psych hospital.
We were together for 22 years before she died.

Since then I haven't come near to another friendship. With the closing of local mental health drop ins I spent 98-99% of my time on my own. The other 1-2% is periodic visits from family.

As well as the Aspergic traits/possible NVLD I would say that I also may have dyspraxia , what I have heard referred to as directional/geographical/spatial dyslexia and aphantasia(though that is not considered by many with it as having a disabling effect).

With this although reckoned to be of above average/high intelligence I do have some cognitive difficulties for which the term "learning difficulties" could probably be used. I score very well on verbal tests but poorly on (visuo) spatial tests/tests of diagrammatic reasoning. I also have difficulties with executive functioning(NB organising and planning)
and slow processing speed.

I come from a generation where unless you were seen as being autistic in childhood your problems in that area were not picked up on. This was long before Aspergers came into existence as a diagnosis.

This late in life I don't see an official diagnosis of those things, whatever you may call them,leading to a massive improvement in my life . I think too much water has gone under the bridge for that.
However it would be good to get some official recognition of those things if only to provide a better picture of the difficulties I face and give a better,more accurate assessment of me as a person.

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Your neurodiverse (Aspie) score: 133 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


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Joined: 17 Jul 2004
Age: 47
Gender: Male
Posts: 108,183
Location: On a special base where the Christmas soldiers of the world live

17 Oct 2016, 1:16 pm

I was diagnosed by a professional at the age of 5.


Age: 47
Gender: Non-Binary
Pronouns: He/Him/His
IQ: 86 and I use all 86 of them.


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Joined: 1 Sep 2015
Age: 46
Posts: 425
Location: California

17 Oct 2016, 5:04 pm

Diagnosed by a professional at 28. The reason I wasn't diagnosed sooner is that autism wasn't known as a spectrum when I was growing up, and I was too high functioning at the time for a diagnosis as a child.


Joined: 25 Nov 2011
Gender: Female
Posts: 4,138

17 Oct 2016, 7:46 pm

I self diagnosed after joining this forum...and since then, I found out from my dad that a psychiatrist I saw when I was 12 thought I was autistic.

Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

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Joined: 27 Aug 2016
Age: 54
Gender: Female
Posts: 70
Location: Pennsylvania

17 Oct 2016, 9:00 pm

Professionally diagnosed and three professionals are in agreement about it. I had been misdiagnosed in the past with other things that just didn't fit. My boyfriend who was also diagnosed noticed things that lead me to question my doctor. It is frustrating being female bodied with ASD and from a time period when most doctors didn't even know about the diagnosis. It is good to have access to the right doctors now, although I am not quite sure if the diagnosis will be of much help at such a late time in my life.


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Joined: 29 Oct 2015
Gender: Female
Posts: 1,021
Location: beyond the Wall

17 Oct 2016, 9:14 pm

I self-diagnosed at first but kept quiet about it. I was an 11-year-old kid, so I wasn't sure if anyone'd take me seriously. Then three years later, I got a professional diagnosis.

Life ... that's what leaves the mess. Mad people everywhere.