Page 2 of 2 [ 29 posts ]  Go to page Previous  1, 2

Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 37
Gender: Male
Posts: 2,592
Location: Europe

08 Aug 2013, 3:29 pm

MagicMeerkat wrote:
bumble wrote:
Sounds like diabetes or diabetes insipidus.

See a gp.


I said in my original post that I had been tested for diabetes multiple times and they always came back negative. If any kind of test involves a urinary cathader, I will refuse. I had one put in after my hystorectomy and it was the most painful expirence of my life. I'd rather die than go through that again.


diabetes insipidus is something COMPLITELY different than the "sugar diabetes". Those two conditions are not even related to each other and the only symptoms they share is exsessive thirst and exsessive pee. And if you have diabetes insipidus than normal sugar diabetes tests are negative, because those conditions are NOT related.

I'm getting checked for diabetes insipidus too and I've the feeling that it's more common in autistics AND that it's underdiagnosed in general.


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


Last edited by Raziel on 08 Aug 2013, 10:38 pm, edited 2 times in total.

loner1984
Veteran
Veteran

User avatar

Joined: 17 Jun 2012
Age: 36
Gender: Male
Posts: 564

08 Aug 2013, 8:51 pm

I have The same so I counted everything I drank an entire day was like 4 liters of water.

Tomorrow you will count every drop of water you drink. Then you have some information to go on. Then see doctor take blood test.

Mine was fine. If you eat very healthy like vegetables and such body needs more water. Basicly the more fiber dense food the more water is needed.



skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 54
Gender: Female
Posts: 7,071
Location: my own little world

08 Aug 2013, 9:35 pm

bumble wrote:
Sounds like diabetes or diabetes insipidus.

See a gp.
I would definitely get tested for DI. They would not test for that in a regular diabetes test because it is different and it's not as common. And if you take certain meds it can bring it on also, I heard that bipolar meds can cause it. But you can still have it even if you don't take meds. DI is caused by a miscommunication between the nerves of the pituitary gland and the kidneys. I think it's the pit gland if I recall correctly but please correct me if I am wrong. But it has nothing to do with sugar diabetes so those tests like the other poster said don't apply, And it can be managed with hormone therapy or with a very simple operation.



Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 37
Gender: Male
Posts: 2,592
Location: Europe

08 Aug 2013, 10:40 pm

loner1984 wrote:
I have The same so I counted everything I drank an entire day was like 4 liters of water.

Tomorrow you will count every drop of water you drink. Then you have some information to go on. Then see doctor take blood test.

Mine was fine. If you eat very healthy like vegetables and such body needs more water. Basicly the more fiber dense food the more water is needed.


You've test especially for diabetes insipidus, otherwise you wouldn't find it.
It's totally underdiagnosed and normal doctors don't even consider it or test for it.


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


dinetahrisingsun
Sea Gull
Sea Gull

User avatar

Joined: 11 Apr 2013
Gender: Female
Posts: 240
Location: West Coast, USA

08 Aug 2013, 11:06 pm

I have the same probleem but not nearly to that extent. I also have been tested for diabeties and it came back negative. Perhapse its hyperglocemia. Sorry to hear you went through all that.

There are medications that will make the mouth Less dry. ... maybe try one of those?


_________________
Seeing beyond the 3rd Dimension.


RetroGamer87
Veteran
Veteran

User avatar

Joined: 30 Jul 2013
Age: 33
Gender: Male
Posts: 9,785
Location: Adelaide, Australia

08 Aug 2013, 11:28 pm

I used to have the same problem during my teenage years. I'd carry a water bottle with me everywhere I went. The teachers didn't mind most of the time and my doctor actually commended me when I saw him for a cold because he said I should be drinking a lot of water when I've got a cold anyway. Then was I was 18 I got diagnosed as prediabetic. I switched to diet soft drinks and learned to like coffee without any sugar and my insulin resistance levels went back to normal. I don't have this problem to the extent that I used to but I still like to keep a glass of water on my desk at the office. Only now do I realise the connection between thirst and diabetes.



dinetahrisingsun
Sea Gull
Sea Gull

User avatar

Joined: 11 Apr 2013
Gender: Female
Posts: 240
Location: West Coast, USA

08 Aug 2013, 11:40 pm

I have the same probleem but not nearly to that extent. I also have been tested for diabeties and it came back negative. Perhapse its hyperglocemia. Sorry to hear you went through all that.

There are medications that will make the mouth Less dry. ... maybe try one of those?


_________________
Seeing beyond the 3rd Dimension.


Annaliina
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 23 Jul 2013
Age: 28
Gender: Female
Posts: 73
Location: United States

09 Aug 2013, 4:19 am

öAö I have this problem too! Well, not to the extent that I drink so much I throw up.. But I do have excessive thirst/ a chronically dry mouth



skibum
Veteran
Veteran

User avatar

Joined: 18 Jul 2013
Age: 54
Gender: Female
Posts: 7,071
Location: my own little world

09 Aug 2013, 6:44 am

But definitely check for DI because you want to make sure you at least rule that out since I think it can hurt the kidneys over time.



loner1984
Veteran
Veteran

User avatar

Joined: 17 Jun 2012
Age: 36
Gender: Male
Posts: 564

10 Aug 2013, 9:26 pm

Well ill definitely have to try and get checked for that. To be sure then. Odd why on earth my doctor didn say anything.

Good idea to keep track of how much your drink over a periode. Sometimes it can feel like a lot more than it really is.



Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 37
Gender: Male
Posts: 2,592
Location: Europe

10 Aug 2013, 11:25 pm

loner1984 wrote:
Well ill definitely have to try and get checked for that. To be sure then. Odd why on earth my doctor didn say anything.

Good idea to keep track of how much your drink over a periode. Sometimes it can feel like a lot more than it really is.


Write down how much you drink, what you drink and how much you pee (measuring container) and also the exact time to it and do this for at least three days. (This is what my doctor toled me to do and is standart to do for test for diabetes insepides and conditions with similar symptoms.)

I would ask your doctor to test for diabetes insepides.
I've met more autistics than you would expect by chance, with symptoms of diabetes insepides.

By the way the part of the brain that produces ADH (also called Vasopressin), the hormone that's lacking in diabetes insepides, is the same part of the brain that also produces oxytocine who is very often lacking in autistics:

"The posterior pituitary (or neurohypophysis) comprises the posterior lobe of the pituitary gland and is part of the endocrine system. Despite its name, the posterior pituitary gland is not a gland, per se; rather, it is largely a collection of axonal projections from the hypothalamus that terminate behind the anterior pituitary gland. It is where neurohypophysial hormones are stored and released."
http://en.wikipedia.org/wiki/Posterior_pituitary


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


Raziel
Veteran
Veteran

User avatar

Joined: 25 Oct 2011
Age: 37
Gender: Male
Posts: 2,592
Location: Europe

12 Aug 2013, 11:07 am

My urologist dx me today with overactive bladder and I agree that I have an overactive bladder BUT I also pee altogether around 4 Liters a day and is 4 Liters pee a day really normal? 8O


_________________
"I'm astounded by people who want to 'know' the universe when it's hard enough to find your way around Chinatown." - Woody Allen


Daydreamer86
Blue Jay
Blue Jay

User avatar

Joined: 11 Aug 2013
Age: 34
Gender: Female
Posts: 94

12 Aug 2013, 3:59 pm

I have the opposite problem-I don't drink enough and have to remind myself to drink as I rarely feel thirsty.