Has your Aspergers/autism worsened with age or diagnosis?

Page 1 of 2 [ 22 posts ]  Go to page 1, 2  Next

Technic1
Toucan
Toucan

Joined: 2 Apr 2021
Posts: 271
Location: Universe

16 Jun 2021, 8:49 am

Has either age or diagnosis worsened your aspergers/autism?

I know it says somewhere that it gets better but I went to a normal school and am now isolated, making my aspergers worse..



Brainiac42
Deinonychus
Deinonychus

Joined: 3 Jun 2021
Age: 24
Gender: Female
Posts: 381

16 Jun 2021, 8:55 am

I’m not sure if mine has gotten worse, or if it is quarantine/isolation/work and school from home that has worsened my social skills.



shortfatbalduglyman
Veteran
Veteran

Joined: 4 Mar 2017
Age: 37
Gender: Male
Posts: 8,036

16 Jun 2021, 9:11 am

After a long time unemployed, Asperger's worsened

But you can't measure Asperger's

It could just be age

Not a controlled experiment



Dandansson
Blue Jay
Blue Jay

Joined: 4 Jun 2021
Gender: Male
Posts: 75

16 Jun 2021, 9:28 am

Brainiac42 wrote:
I’m not sure if mine has gotten worse, or if it is quarantine/isolation/work and school from home that has worsened my social skills.

I never had to experience a quarantine. Not even the lockdown that a lot of people talk about. Do I even know what it is?
I did a lot of working and studying from home and it really work verry well. It helped me a lot. I got better social skills after distance working and studying. I do meet people as well.
Now I know what can be done with "distance" and what can't.



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 20,424
Location: South-East England

16 Jun 2021, 11:21 am

My social skills have gotten so much better over the years, but my ADHD has worsened.


_________________
Female
Aged 31
On antidepressants
Have ASD, ADHD and anxiety disorder
Empathy score: 61 out of a possible 80. (High)


WhatTheHey
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 16 Jun 2021
Age: 121
Posts: 39

16 Jun 2021, 7:51 pm

Mine gets a lot "worse" when I've not had to deal with others for a time. It's like being able to relax finally, but then others get cranky about it and I have to put the mask back on.


_________________
Diagnosed ASD 2011


Texasmoneyman300
Deinonychus
Deinonychus

Joined: 25 Feb 2021
Age: 30
Gender: Male
Posts: 373
Location: Texas

17 Jun 2021, 2:04 pm

Technic1 wrote:
Has either age or diagnosis worsened your aspergers/autism?

I know it says somewhere that it gets better but I went to a normal school and am now isolated, making my aspergers worse..

I think it may of gotten worse because i cant get a good job.



dragonsanddemons
Veteran
Veteran

User avatar

Joined: 19 Mar 2011
Gender: Female
Posts: 6,165
Location: The Labyrinth of Leviathan

17 Jun 2021, 3:28 pm

I was diagnosed early and had never even heard the word autism before, so I doubt that changed a thing for me. Not entirely sure if it has gotten worse over time, become more apparent with life changes and changing expectations, or some combination thereof. I did well in school with my stereotypical Aspie memory, and I have always tried to do whatever I can to avoid drawing attention to myself in public, not “masking” but essentially being invisible, so people see me enough to not run into me or sit in a chair I’m in but otherwise as far as everyone else is concerned, I may as well not exist. So probably I wasn’t quite so blatantly obvious and didn’t have as much trouble from it when I was younger, and it became more of a problem when the expectation was no longer just get good grades and lie low. I don’t think I’ve made a successful life transition on time since starting school, that is usually when it is most apparent for me (puberty, college, working, living on my own, etc.). When I was a kid I fully expected to grow up, live independently, and have a good job just like most people, but as it grew nearer, it became clear that it wasn’t going to happen, quite likely ever.


_________________
Yet in my new wildness and freedom I almost welcome the bitterness of alienage. For although nepenthe has calmed me, I know always that I am an outsider; a stranger in this century and among those who are still men.
-H. P. Lovecraft, "The Outsider"

When you assume, it makes an a** out of u and me.

Hating others for supporting hateful people does nothing to stop the spread of hatred.


IsabellaLinton
Veteran
Veteran

User avatar

Joined: 1 Nov 2017
Gender: Female
Posts: 39,073

17 Jun 2021, 3:33 pm

I maxed out / peaked about 20 years ago. Now I don't push myself to be anything or anyone that I'm not. I keep simple routines in my own space with a lot of time to relax and stim. I don't make any social commitments. It's all very good, but if I had to spend a day in the outside world I'd have a very hard time adapting.

I started ADHD meds in spring 2020 and they've helped a lot - not with the social / sensory aspects of autism, but with my overall clarity and motivation.



Qbeez999
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 8 Apr 2013
Age: 30
Gender: Female
Posts: 25
Location: Scotland

17 Jun 2021, 4:21 pm

I feel I've got better in some ways and worse in others. I was diagnosed at 3 and used to have a really high pitched voice and repeated everything my parents said. I grew out of it eventually thankfully before I started school. As a child I hardly had any social anxiety and didn't mind family gatherings. As an adult I hate them. I guess because as a child I wasn't expected to socialise.



MrsPeel
Veteran
Veteran

Joined: 1 Oct 2017
Age: 50
Gender: Female
Posts: 1,424
Location: Australia

17 Jun 2021, 9:26 pm

Yes, mine has worsened.
I'd say I've been on a downhill slide since around the age of 35.

At first I thought the issue was that having discovered I was on the spectrum I was thinking about it more and so it was becoming more obvious. But now I'm nearly 4 years post-diagnosis and still struggling with either worsening autism (severely limited ability to socialise and more meltdowns) and/or mental health issues (as I find it hard to tell where autism ends and mental illness begins).

I think it might be from a combination of the stress of being expected to handle adult responsibilities (I have 2 children and a job, and struggle somewhat to manage both), and having lower energy reserves as I get older.

I read a paper recently which studied autistics over time and found overall improvement in functioning.
But when I checked the details, it only followed autistic children up to the end of the teenage years.
:roll: Nobody bothers to check what happens to us autistic adults as we get older.



Aero_T
Emu Egg
Emu Egg

Joined: 1 Mar 2021
Age: 40
Posts: 8
Location: UK

18 Jun 2021, 4:02 am

With age and experience I have fewer meltdowns and can mostly avoid them and the reckless behaviour of my youth.

I was very late diagnosed so I dont know what my life would have been like if I had understood myself and my differences earlier in life.

But with age I just find myself caring less what other people think of me. I have stopped (not completely) being anxious about trying to fit in. I find I am happier as a result. But then I am lucky and do not atm either have or need a job.



kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 76,341
Location: Queens, NYC

18 Jun 2021, 6:54 am

I was a raging autistic upon diagnosis at age 3.

I’ve consistently “gotten better” since.

I still have a long ways to go, though.



techstepgenr8tion
Veteran
Veteran

User avatar

Joined: 6 Feb 2005
Age: 41
Gender: Male
Posts: 22,060
Location: The 27th Path of Peh.

18 Jun 2021, 7:21 am

I'm guessing it depends on life conditions, stress, and how well you're able to (or how well your environment allows you to) take care of yourself.

Isolation can be one thing that attenuates social skills. Also stress, if you're under enough strain the surface layer stuff gets jettisoned in favor of survival and at that point you end up in a position where it will seem like there are much bigger problems at hand than being able to 'pass for NT'.

It seems like our strategies and maps of reality, at least for most of us, improve as we get older and the question ends up being then how many factors are moving in the opposite direction and do they overpower that.


_________________
"The individual has always had to struggle to keep from being overwhelmed by the tribe. To be your own man is a hard business. If you try it, you'll be lonely often, and sometimes frightened. But no price is too high to pay for the privelege of owning yourself" - Rudyard Kipling


Lady Strange
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 21 May 2021
Age: 37
Gender: Female
Posts: 61
Location: USA

19 Jun 2021, 2:46 pm

I think in a way it has gotten worse for me. The sensory stuff seems worse, and the social stuff seems worse and harder to handle but it could be that I'm in less tolerant circumstances right now so it is making it more difficult.

I got a job in a little more of a "professional environment" and it has been very very difficult, I feel like my social skills have taken a real nose dive. Lots of meltdowns especially at home. I come home and practically barricade myself in blankets. I am learning that a more chill environment helps me do better because I'm not so nervous trying to act correctly. Hopefully my next job will be more like that.


_________________
Figured out in summer of 2020 about 99 percent sure that I have autism (with lots of research and help of my husband and doctor). Cannot get official diagnosis yet (can't find anyone to diagnose adults).


Last edited by Lady Strange on 19 Jun 2021, 2:49 pm, edited 1 time in total.

Lady Strange
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 21 May 2021
Age: 37
Gender: Female
Posts: 61
Location: USA

19 Jun 2021, 2:47 pm

techstepgenr8tion wrote:
I'm guessing it depends on life conditions, stress, and how well you're able to (or how well your environment allows you to) take care of yourself.

Isolation can be one thing that attenuates social skills. Also stress, if you're under enough strain the surface layer stuff gets jettisoned in favor of survival and at that point you end up in a position where it will seem like there are much bigger problems at hand than being able to 'pass for NT'.

It seems like our strategies and maps of reality, at least for most of us, improve as we get older and the question ends up being then how many factors are moving in the opposite direction and do they overpower that.


Very well said! I agree, yes the more stress = the harder to cope. I've learned this a lot this past year.


_________________
Figured out in summer of 2020 about 99 percent sure that I have autism (with lots of research and help of my husband and doctor). Cannot get official diagnosis yet (can't find anyone to diagnose adults).